I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
Elijah was just 5 months old during his first EEG. This is what confirmed that he was having infantile spasms. That same day we also got the Tuberous Sclerosis diagnosis. Since July of this year Elijah has blossomed. He went from a newborn level 5 month old to only baby steps behind his twin sister at 11 months old. He is not letting his diagnosis hold him back. But now we believe he is experiencing other types of seizures. Elijah is going to need, at least, yearly EEG’s along with other tests. Even though he is experiencing so much at such a young age, he is such a happy guy.