I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
Zion has GEFS+1.
What makes Zion so amazing? Zions began to have seizures at about 9 months of age. He’s our hero we’ve almost lost him a few times but he’s a fighter. He has EEG’s at least once a year coming home with all the wires for at least a week. Doctors are torn between a diagnosis of GEFS+1 and Dravet syndrome he’s now 7 years old and still don’t have a final diagnosis that’s why he has so many EEG’s.
|MARGE ORGA||$40||November 30, 2020|