Hannahtopia
NillyNoggins, G-Tube Covers, and More
Hannah and I thought you’d enjoy knowing a bit more of the story behind Hannahtopia. My daughter Hannah and I are – and always have been – all about color 🌈. (Well at least for Hannah. As for me it seems I’m always wearing black?! Maybe it’s for a slimming factor? Too many late nights …
At Hannahtopia, our mission is to make a difference in the lives of children who live with the challenges of epilepsy, all of whom must have EEG tests. 3.4 million people suffer from Epilepsy nationwide and 470,000 of them are children.Source: CDC (cdc.gov/epilepsy/data/index.html) Our mission is for every child that requires an EEG to have …
As a mom of a young lady that is now 16 (?! where did the time go?!) and who has unfortunately suffered from seizures for all but three months of her life, we have encountered many non-profit organizations with a common mission related to Epilepsy. I want to share these foundations with you. We have …
At Hannahtopia®, we are committed to offering top-notch, quality, colorful, comfy and functional products. Like the quality feeding tube covers from Adorabelly Design! Many of our products were created out of necessity by parents of children living with medical challenges. One such company is Adorabelly Design, created by Julie Reba Switala. Meet the Adorabelly Design …
Welcome to our NillyNoggin EEG Cap “Before/After” series! In this series you will meet children who are receiving EEG tests and get to wear a NillyNoggin® EEG Cap during the procedure! We hope you enjoy the “before” and “after” expressions on their faces! We’re so excited to see these smiles! Epilepsy impacts 1 in 20 …
A better way to phrase this question is actually: Why didn’t I create the NillyNoggin EEG Cap years ago?! How I Got the Idea for a NillyNoggin® EEG Cap My daughter, Hannah, has been through countless EEG’s. They always cause anxiety, stress, and mad times. As I sit beside her during each and every one of …
EEG Technologists who have the opportunity to use NillyNoggin EEG Caps with their patients have shared their praise for the new product and the important ways it helps brighten the experience for the child. “As an EEG technologist who has worked in the field for over 34 years, I know that the experience of having …
A Feeding Tube Journey: The Best Decision We Ever Made by Julie Michaels Hannahtopia.com Editor Note: Being that it is summertime, a time often spent in bathing suits – exposing tubies for those with feeding tubes, we felt this story of Sydney’s feeding tube journey was so appropriate to share with everyone this month! My …
The Rainbow After the Storm: A Dravet Syndrome Story Hannahtopia.com Editor note: This story is posted in honor of Dravet Syndrome Awareness Month (June) and International Dravet Syndrome Awareness Day (June 23). It is a story about the loss of a child as well as a story of a child with Dravet Syndrome and his …
Children with epilepsy receive EEG tests, often on a regular basis. The test, officially known as an electroencephalogram, is used to find problems related to electrical activity of the brain. What is an EEG Test? An EEG tracks and records brain wave patterns. Small metal discs with thin wires (called electrodes or leads) are placed …
Stuffed Animals Help Kids with Special Needs and Medical Challenges Children with special needs and those facing medical challenges need many different types of support. There’s all their medical care including doctor visits, therapy sessions and hospital stays. They require extra equipment at home and probably extra nursing care or a para to assist them …
People often ask us about the word Hannahtopia®: “Where did the name Hannahtopia came from?” “What does it mean?” From Heather (Hannahtopia co-founder and epilepsy/special needs mom): Hannahtopia is named after my daughter Hannah. It is Hannah’s imagined place where everything is perfect. Her version of “utopia” – which we call “my topia”. Thus the …
