I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
Where do I start? Abel was born with a massive amount of fluid in his brain which at just 2 days old required a brain surgery to place a shunt. The shunt drained too quickly causing a large blood clot throughout his brains sinuses. After bringing him home from a 30 day stay in the NICU we were life flighted back to Colorado only a week later. At 3 months old he developed epilepsy (another life flight) that later was diagnosed as drug resistant.
We have battled his seizures for 3 years now and we are now at a point that removing part of his brain might possibly be the solution to ending his seizures. The first week of May we will be at Children’s Hospital and he will be hooked up to an EMU for 5 days! During his last 24 hour EEG I was so frustrated with wires and wrap. I knew then that I needed NillyNoggin for him and this is why I am nominating him. Abel is amazing and happy and has the most heart meeting smile.
|Celeste Brant||$20||April 26, 2022|