I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
Eliana has Dravet Syndrome.
Our girl is an angel! We were not supposed to be be able to conceive but here she is!!! My baby girl gives us so much strength and hope. She loves to love everyone and just knows how to settle mom and dad down when we are overwhelmed after a seizure. No matter how long or physically demanding the seizure, we always get a smile (sometimes mis seizure) and I know it’s her just saying “I will be ok guys”. She has been doing this since her first seizure at 2 months old.