Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

My identical twins sons together have been through more than 10 brain surgeries, multiple organ body scans, countless lab draws, and so much more that Tuberous sclerosis complex gave us. They are both autistic and globally delayed-they just turned 6 years old but are cognitively around 1 year olds. Because of this they struggle to understand to keep their EEG leads on and we are looking into options to help them ease the discomfort they have associated to EEGS. Through it all they are both loving, sweet, and happy 99% of the time. They are the bravest boys I’ve ever met and make everyone who knows them genuinely smile. I am proud to show their journey to others in efforts to help the next families out who have been given this diagnosis.

Manuel and Martin

by Heather Shuker

  • $50

    Funding Goal

  • $450

    Funds Raised

  • Campaign Never Ends

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Heather Shuker

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Name Donate Amount Date
Tom & Irene Ulm $50 September 11, 2024
Don Anderson $50 September 11, 2024
Avo and Grandma Va Avila $200 September 10, 2024
Dena Gilroy $50 September 10, 2024
Diane Verissimo $50 September 09, 2024
Sarah Deliyiannis $50 September 09, 2024