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I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Evaleigh was diagnosed with infantile spasms at the age of 9 months, shortly after she was diagnosed with absent seizures. She turned 3 in June of 2024 and as last week they have confirmed she has failed all suitable medications. She is a twin that was born at 34 weeks, her brother is great although he was the trouble maker in the wound but my sweet Ev suffered a stroke in the process of labor unknown to us until about a year ago. We have seen three different specialist and have fought to get answers. We went to a local hospital they told us baby’s under 2 didn’t have seizures, referred to UVA they said they could do nothing else and unsure what was going on, then was referred to Dr. Lee at AdventHealth in Orlando FL. UVA had used something similar to NillyNoggins but Advent had not heard of such so here we are getting ready to go for surgical evaluation in the upcoming month, as decided on Friday of last week after a 16 minute long seizure. During that time she will have the video monitoring for at least 5 days and we would love to have a NillyNoggin to ease her during that time and the times to follow. We live in a small town in VA and fly to Florida to make sure our sweet warrior gets the very best care and hopefully will one day look back at this journey as just that!

Evaleigh J

by Heather Shuker

  • $50

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  • $95

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Heather Shuker

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Name Donate Amount Date
Megan Coley $20 September 05, 2024
Juanita Shields $25 September 05, 2024
Anonymous $50 September 05, 2024