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Here’s What Warriors Have to Say!

You are here: Home / Here’s What Warriors Have to Say!
girl standing in front of trees wearing a tie dye nillynoggin eeg cap while testing for an eeg

“Rylee just turned 12 and was diagnosed with BRE at age 6, and then ESES at age 8.  The ESES had been hard to manage and has required frequent med changes and trials which come with frequent EEGs.  She has had ambulatory EEGs about every 3 months for the past 2+ yrs.  NillyNoggins have given Rylee back comfort and dignity while she is around family and friends during testing, and makes her feel fashionable!  Thank you Heather and Hannah for all you do for Epilepsy Warriors!”

Rylee PWarrior Mom Ryan

Many parents have praised the NillyNoggin EEG Cap. Parents report it has been very helpful in distracting their child from the EEG setup and study. Once the leads are placed, the cap is placed on the child’s head over top of the leads. The cap helps keep the leads in place and deters the child from touching the leads. The caps are also fun and colorful which helps to distract from the procedure allowing a better result. I highly recommend this one-of-a-kind cap!

Dr. Shelley Williams, MDPediatric Neurology, UPMC Children’s Hospital of Pittsburgh

It does something for hiding how scary and obscene they look.  He is calmer!  He has not fussed with them one time!  Not one.  Going to the bathroom was always such a big deal too because he would forget about them and then see them in the mirror and start freaking out again.  He NEVER messed with them!

Denise (Warrior Mom)Warrior Mom – Denise ~worn at Children’s Hospital of Pittsburgh (CHP)

I can’t tell you how many eeg’s we have had that I truly wish I found Hannahtopia sooner! Jeremiah is now almost 7 years old and becoming more aware of what’s socially acceptable, walking into the lab he cried “people make fun me” I showed him the cap and omg he lit up!  BTW we went everywhere with our cap and jj is a wild lil guy never had to readjust or had to worry cause it fell off! It’s literally perfect.

JeremiahWarrior Mom – Nicole ~worn at Children’s Hospital of Los Angeles (CHLA)
boy sitting on hospital bed getting eeg wearing a blue nillynoggin eeg cap and laughing

“This is seriously the best thing for kids when they get an EEG!”

Jax R.Warrior Mom Sara ~ testing at Nationwide Children’s Hospital

“Thank you for creating this product. It makes going through a difficult situation so much easier on both the patient and the caregiver. It was hard emotionally for me to see my boy with all those wires. So much of what we’d experienced with seizures came flooding back. The NillyNoggin humanizes the experience. My boy went from looking like a science experiment (his words) to being Adam, a playful child with a condition we’re trying to understand.”

AngelaWarrior Adam’s Mom

“NillyNoggin EEG Caps really bring a lot of positive energy to the room [when a child is wearing one]. Because your EEG technicians, your nurses, your doctors, your family and your friends. They give the child all this positive attention which makes them feel like the rockstars that they are!”⁠

Heather ShukerCo-Founder of Hannahtopia

Oh my gosh, I can’t even tell you how much the nurses, doctors and EEG techs LOVE Chloe’s Nilly Noggin!! They’ve never seen anything like it and we’re so excited to see how it worked and after it was on. Chloe was so excited since they didn’t have to use gauze also and she just has the cap on. Best thing ever!! Thank you for making such an amazing product and bringing style to our ugly boring hospital stays!! 

ChloeWarrior Mom – Robin ~worn at Loma Linda University Children’s Health

“Love the NillyNoggin EEG cap! It makes EEGS just a bit more fun. These seem to really give the kids something to smile about and not feel like the stand out so much”⁠

Dani O.Certified Child Life Specialist, Children’s Hospital of Pittsburgh

It’s very well made, from cute material (unicorn) and soft. Much better than gauze wrapped around her head. Alyssa is autistic and the cap is well tolerated by her. We love it thank you!

AlyssaWarrior Mom – Carol ~worn at Duke University in Durham, NC

We LOVE our Nilly Noggin EEG cap! Our nurses love it just as much. Shipping was bar none! I ordered it around 11am and by 3pm the same day I had a shipping confirmation. I would definitely recommend these if your child is a little anxious or new to the long VEEG’s like us!

Tabetha (Warrior Mom)Warrior Mom – Tabetha ~worn at Cook Children’s Ft Worth Texas
girl wearing a pink pineapple nillynoggin getting an eeg and drinking from a sipping cup while sitting in her stroller

“Liv has an EEG Cap cover on to feel more comfortable as well as fashionable! First time ever Liv did not cry while they put on her EEG!”

Liv H.Warrior Mom Nicole H. ~ EEG at Stanford Medicine Children’s Health

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