I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
At 6 months old she was diagnosed with head drop seizures. We thought she had infantile spasms but the seizures weren’t in the area they are seen. Turns out an mri revealed the left side of her temporal lobe is underdeveloped, she has left side hippacampal malrotation and a brain cyst on the same side too. She gets eeg every 6 months unless there is an emergency. Which we have had several. She is one, walking now and into everything. Wires are her favorite to play with so having something to hide them when she has v-eeg’s would be a blessing. Her middle name is Queen. We call her our little Queen Bee . She has a warrior sister who has gotten a Nilly cap from you guys. Two kiddos with seizures is so stressful and my 2 year old having her cap has helped so much. I know if Tahlia gets one it would be a blessing.