Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

At 6 months old she was diagnosed with head drop seizures. We thought she had infantile spasms but the seizures weren’t in the area they are seen. Turns out an mri revealed the left side of her temporal lobe is underdeveloped, she has left side hippacampal malrotation and a brain cyst on the same side too. She gets eeg every 6 months unless there is an emergency. Which we have had several. She is one, walking now and into everything. Wires are her favorite to play with so having something to hide them when she has v-eeg’s would be a blessing. Her middle name is Queen. We call her our little Queen Bee 🐝. She has a warrior sister who has gotten a Nilly cap from you guys. Two kiddos with seizures is so stressful and my 2 year old having her cap has helped so much. I know if Tahlia gets one it would be a blessing.

Tahlia B.

by Heather Shuker

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Heather Shuker

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