Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Savannah started having seizures around 9 months old. We initially thought they were night terrors that she would outgrow. However, after researching, our gut as her parents told us it was something more. After 3 opinions, including an epileptologist, we finally found our current neurologist. For the first time, we were being heard. He trusted us that something wasn’t right. Surely enough, she has a rare form of epilepsy that is difficult to diagnose because of its symptoms and location in the brain.

Through ALL of this, including endless testing and hospital stays and medication trials, our girl has been AMAZING. She’s always smiled through it and rarely complains. She is such a silly and spunky girl. Our little warrior.

Savannah S.

by Heather Shuker

  • $40

    Funding Goal

  • $80

    Funds Raised

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Heather Shuker

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Name Donate Amount Date
Rebecca Terry $40 January 23, 2022
Alexus Mavis $40 January 23, 2022