I am SO excited to receive my NillyNoggin cap!

I’m even more excited to be part of the Warrior Troop at Hannahtopia.

The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!

Back My Campaign!

This is My Story

One day she was running  around the house and in an instant our world changed. Here’s Quinn’s story, at about 5 months I started noticing that she had “light” patches on her body. Nothing noticeable to outsiders, but I asked the doctor about them and there didn’t seem to be to many concerns. Around 6-7 months I started noticing she seemed “frightened” upset and shaking for moments. Again, didn’t think much of it. It wasn’t until 2 days after her 1st birthday she had another “frightened” moment… only this time it looked a little different. It was a Seizure, and at this point I knew that what had been going on. I immediately took her to the pediatric emergency room, and we were admitted shortly thereafter. Quinn had an eeg – Epilepsy episodes were being picked up. She had an mri- tumors were found on her brain. Following this we were given the diagnosis- tuberous sclerosis complex. No cure. Following this, they immediately did an ultrasound of the heart  and kidneys. Heart – 2 tiny tumors. Kidney- cysts. Quinn’s on medication for her seizures which we have now had control over them for about a week. She has had to have many eegs since our initial one. She has been so strong and brave through all this.