Short Story

I was nominated to join the Warrior Troop and now I am on the Waiting List for my NillyNoggin EEG Cap!

I am SO excited to receive my NillyNoggin cap!

I’m even more excited to be part of the Warrior Troop at Hannahtopia.

The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!

I am so excited to receive my NillyNoggin!

Can you help me? I’m on the Waiting List for my NillyNoggin.

There are A LOT of other amazing warriors waiting as well. If we can raise $50 then my NillyNoggin cap will be sponsored and I won’t have to wait!

Plus if we work together we can achieve even more! If we raise over $50, we can help sponsor NillyNoggin caps for other warriors on the Waiting List!

I would really like to help my warriors in the troop. I know what it means to fight every day and it’s easier with a troop of warriors fighting alongside me.

Our little princess warrior was born 26 weeks young. A “micro-preemie” at 12” & 1.5lbs . It was touch-n-go, seemed like every challenge concord another came up. ? after a looong 100Days stay in the NICU. Olivia Grace graduated and came home❤️. It was amazing absolute bliss! At 7 1/2 months (11 corrected) the nightmare began for us…IS (infantile spasms) which transformed into Miller-Dieker syndrome after a handful of failed meds. Gracefully we were blessed with complete seizure control (seizure free) for almost a whole 4 years (3mth short). Till March of 2020, the year from hell. Right at the start of all the COVID-19 madness and too top it off, our neurologist broke the news to us mid-December 2020 that he was moving states and no longer going to practice medicine. ? So , this coming month we are set to start Olivia’s Neuro/seizure care with a whole new Neuro team. We are scheduled for a 48hrs video EEG the day after her 6th birthday. ??

Olivia D.

by Heather Shuker

  • $40

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  • $50

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Heather Shuker

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Name Donate Amount Date
Maria Silva $30 March 05, 2021
Anonymous $20 March 05, 2021