Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Our little princess warrior was born 26 weeks young. A “micro-preemie” at 12” & 1.5lbs . It was touch-n-go, seemed like every challenge concord another came up. ? after a looong 100Days stay in the NICU. Olivia Grace graduated and came home❤️. It was amazing absolute bliss! At 7 1/2 months (11 corrected) the nightmare began for us…IS (infantile spasms) which transformed into Miller-Dieker syndrome after a handful of failed meds. Gracefully we were blessed with complete seizure control (seizure free) for almost a whole 4 years (3mth short). Till March of 2020, the year from hell. Right at the start of all the COVID-19 madness and too top it off, our neurologist broke the news to us mid-December 2020 that he was moving states and no longer going to practice medicine. ? So , this coming month we are set to start Olivia’s Neuro/seizure care with a whole new Neuro team. We are scheduled for a 48hrs video EEG the day after her 6th birthday. ??

Olivia D.

by Heather Shuker

  • $40

    Funding Goal

  • $50

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Heather Shuker

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Name Donate Amount Date
Maria Silva $30 March 05, 2021
Anonymous $20 March 05, 2021