I am SO excited to receive my NillyNoggin cap!

I’m even more excited to be part of the Warrior Troop at Hannahtopia.

The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!

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This is My Story

Octavia-Grace’s primary diagnosis is Smith kingsmore syndrome.

Octavia-Grace was born 5 weeks early and for the first 6 weeks everything was perfect. At her 6 week check her head had grown 6cm, at 4 mths the seizures started at 5 mths she started in physio as she couldn’t hold her head. At the age of 4 she started having hypoglycemic episodes and in October 2019 we nearly lost her but she pulled through she is now peg fed.
She has epilepsy, hypoglycaemia, autism, hypermobility, hypotonia, sensory processing disorder, server global development impairment and she in a wheelchair but none of that stops her shes always smiling. She is a very determined little girl.