Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Octavia-Grace’s primary diagnosis is Smith kingsmore syndrome.

Octavia-Grace was born 5 weeks early and for the first 6 weeks everything was perfect. At her 6 week check her head had grown 6cm, at 4 mths the seizures started at 5 mths she started in physio as she couldn’t hold her head. At the age of 4 she started having hypoglycemic episodes and in October 2019 we nearly lost her but she pulled through she is now peg fed.
She has epilepsy, hypoglycaemia, autism, hypermobility, hypotonia, sensory processing disorder, server global development impairment and she in a wheelchair but none of that stops her shes always smiling. She is a very determined little girl.

Octavia-Grace G.

by Heather Shuker

  • $40

    Funding Goal
  • $60

    Funds Raised
  • Campaign Never Ends

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Heather Shuker

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Name Donate Amount Date
Jason Guyler $15 January 01, 2021
Anonymous $40 December 31, 2020
Anonymous $5 December 31, 2020