I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
Nolan was born with congenital hydrocephalus. When he was a week old, he had an etv to make a hole in his ventricle to allow his csf to pass. After the first surgery he had some complications. He was having seizure like activity and he forgot the sucking motion. He also developed a blood clot in his brain. At two weeks old, the neurosurgeon had to retrieve the blood clot and redo the etv because the blood particles were clogging the hole that was made. He was also put on a anti seizure medication. When Nolan was two months old, the etv stopped working and he had emergency surgery to put in a vp shunt. The shunt takes the CSF and drains into his belly. Around 10 months old Nolan was diagnosed with craniosynostosis and had a CVR (cranial vault reconstruction) to give his brain room to grow. He is monitored close by his neurosurgeon and neurologist. No matter what Nolan has been through, he is a very happy child