Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Nolan was born with congenital hydrocephalus. When he was a week old, he had an etv to make a hole in his ventricle to allow his csf to pass. After the first surgery he had some complications. He was having seizure like activity and he forgot the sucking motion. He also developed a blood clot in his brain. At two weeks old, the neurosurgeon had to retrieve the blood clot and redo the etv because the blood particles were clogging the hole that was made. He was also put on a anti seizure medication. When Nolan was two months old, the etv stopped working and he had emergency surgery to put in a vp shunt. The shunt takes the CSF and drains into his belly. Around 10 months old Nolan was diagnosed with craniosynostosis and had a CVR (cranial vault reconstruction) to give his brain room to grow. He is monitored close by his neurosurgeon and neurologist. No matter what Nolan has been through, he is a very happy child

Nolan F.

by Heather Shuker

  • $40

    Funding Goal

  • $40

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Heather Shuker

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Name Donate Amount Date
Jerri Rush $40 January 24, 2021