Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Mia was diagnosed with lissensephaly and epilepsy in the middle of January in 2021. At first what we thought was cute with her little winks here and there was what we thought was nothing ended up being that she was having focal seizures and infantile spasms and on top of that she was diagnosed with a rare genetic disorder lissensephaly which means she has smoothness in a part of her brain she has been doing physical therapy since February and on top of Physical Therapy has been doing speech therapy and soon will be doing occupational therapy. For a nine month old she is a warrior she has been in and out of the hospital repeatedly more than I can count within the six months she’s gotten EEGs every visit to make sure there’s no new onset seizures or to see how well the medication is control is controlling the seizure activities in March she started keto diet a medical induced diet and with that on top of her medication it has helped with controlling her seizures and helped her . It’s crazy to think that this little girl has gone through so much but yet is so resilient and has so much character in so much love. Every time she gets admitted to the hospital it’s scary and she is scared and once she realizes where she’s at and which is funny because she knows where she’s at she tends to calm down and realize I’m safe in there here in these doctors are here to help me she’s become so accustomed with EEGs that she falls asleep every time they hook her up to the machine or they prep her to put her onto the machine and she’s done so well with not touching anything on her head and it is just smiling all the time she brightens up everyone’s day there at the hospital and the nurses just love her and Pretty much she’s such a strong little girl and such a warrior to be going through what she goes through and still smiling through it all I look at my daughter and I go through what people tell me how you’re so strong to be going through this and you’re so strong for your daughter and this is that and I have to stop them sometime and say no I’m not the strong one my daughter is she is strong she helps me help her she goes through all of this and whenever mom is worried or scared she knows just the right time to look at me and give me a smile as if she’s telling me hey mom I’m OK just smile mommy. My daughter gives me the strength every day to help her overcome her obstacles she’s not lucky to have me as a mom I am lucky to have her as a daughter she is perfect and I wouldn’t change nothing about her.

Mia H.

by Heather Shuker

  • $40

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Heather Shuker

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Name Donate Amount Date
Marissa Ramirez $20 June 20, 2021
Josefina Herrera $40 June 18, 2021
Lorena Lopez $40 June 18, 2021
Ilse Salazar $10 June 18, 2021
Sandra Thomas $40 June 18, 2021