I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
Leah has nonketotic-Hyperglycemia.
Leah is 3 years old now I’m Leah biological great aunt but Leah knows me as mommy Leah came to live with me at 2 month old only 7lbs Leah was neglected by her biological parents Leah was born on November 8th 2017 at UK children’s hospital in Kentucky at 34 weeks and 5 days weighing at 4 lb 6 oz Leah had a stroke at birth Leah still didn’t seem right to the doctors they done blood test spinal taps a full medical workup and still couldn’t find anything but the stroke wrong with Leah and that she was a sleepy baby the doctors wanted further genetics testing and follow up with the neurologist but Leah’s biological parents did not take her back for any further testing she was discharged to go home with her biological parents Leah end up getting rhino intro virus her pediatrician told the biological parents that they needed to take Leah to the hospital they refused Leah was taking out of the home and sent to UK children’s hospital where Leah was diagnosed with nonketotic-Hyperglycemia and lennox gestaut syndrome at that time Leah was only given 6month to 1 year to live Leah is mentally and physically disabled and nonverbal but has a smile that’s can warm the coldest hearts Leah has been in and out of hospice care for the last 3 years Leah is recovering from covid-19 at the moment and is fighting it like a true superhero Leah has brought so much joy and love to us and anyone that meet her.