Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Leah has nonketotic-Hyperglycemia.

Leah is 3 years old now I’m Leah biological great aunt but Leah knows me as mommy Leah came to live with me at 2 month old only 7lbs Leah was neglected by her biological parents Leah was born on November 8th 2017 at UK children’s hospital in Kentucky at 34 weeks and 5 days weighing at 4 lb 6 oz Leah had a stroke at birth Leah still didn’t seem right to the doctors they done blood test spinal taps a full medical workup and still couldn’t find anything but the stroke wrong with Leah and that she was a sleepy baby the doctors wanted further genetics testing and follow up with the neurologist but Leah’s biological parents did not take her back for any further testing she was discharged to go home with her biological parents Leah end up getting rhino intro virus her pediatrician told the biological parents that they needed to take Leah to the hospital they refused Leah was taking out of the home and sent to UK children’s hospital where Leah was diagnosed with nonketotic-Hyperglycemia and lennox gestaut syndrome at that time Leah was only given 6month to 1 year to live Leah is mentally and physically disabled and nonverbal but has a smile that’s can warm the coldest hearts Leah has been in and out of hospice care for the last 3 years Leah is recovering from covid-19 at the moment and is fighting it like a true superhero Leah has brought so much joy and love to us and anyone that meet her.

Leah E.

by Heather Shuker

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Heather Shuker

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