I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
Justin is diagnosed with CMT1A which is a peripheral nerve disease (he has a triplication of his 17p12 including his pmp22 gene and is 1 out of 30 in the world with this mutation). He is also diagnosed with periodic limb movement disorder, myoclonic episode, asthma, sinus arithmea, incomplete right bundle branch block, anemia, and several other diagnosis.