Help Me Feel like a Rockstar!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.
The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.
And Just a Bit More About Me
Justin is diagnosed with CMT1A which is a peripheral nerve disease (he has a triplication of his 17p12 including his pmp22 gene and is 1 out of 30 in the world with this mutation). He is also diagnosed with periodic limb movement disorder, myoclonic episode, asthma, sinus arithmea, incomplete right bundle branch block, anemia, and several other diagnosis.