Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Joshua has had epilepsy due to rare congenital brain abnormalities, including a schizencephalic cleft, agenesis of the corpus callosum, and grey matter heterotopia since he was a 10 month old infant. He is a twice-exceptional, hilarious 7 year old now. He’s obsessed with Sonic the Hedgehog, Harry Potter, Percy Jackson, and The Last Kids on Earth. He reads for several hours per day, as he taught himself to read in preschool! He loves jokes, especially puns and knock-knock jokes. He has started to draw cartoons of his favorite characters every day now that he has gained the fine-motor control to do so. He makes us laugh and smile every day! We’ve been in the hospital far too much for our preference this year, and we are hoping for a wonderful sponsor who can sponsor his next inpatient extended EEG. Thank you so much!

Joshua R.

by Heather Shuker

  • $50

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Heather Shuker

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