Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

My sweet boy was diagnosed with TSC at 2 days old. While in utero they found spots on his heart, referred to as Rhabdomyomas associated with TSC but the official diagnosis came after he was born and in NICU when they did an MRI of his brain an saw “tubers” (benign tumors) on his brain. These tubers can cause seizures. They did an EEG and saw seizure spikes in his brain waves so they put him on Keppra. We went 8 months seizure free then he started have seizure episodes. He is 9 months now. He has routine EEGs, EKGs, MRIs, bloodwork. You name it, he’s had it done! He is a true warrior and the sweetest baby!

Finnley H.

by Heather Shuker

  • $50

    Funding Goal

  • $135

    Funds Raised

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Heather Shuker

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Name Donate Amount Date
Anonymous $20 July 11, 2023
Kelsey Sowers $15 July 11, 2023
Jennifer Lemons $50 July 11, 2023
Cynthia Martin $30 July 11, 2023
Anne Eichelberger $20 July 11, 2023