Help Me Feel like a Rockstar!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.
The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.
And Just a Bit More About Me
My sweet boy was diagnosed with TSC at 2 days old. While in utero they found spots on his heart, referred to as Rhabdomyomas associated with TSC but the official diagnosis came after he was born and in NICU when they did an MRI of his brain an saw “tubers” (benign tumors) on his brain. These tubers can cause seizures. They did an EEG and saw seizure spikes in his brain waves so they put him on Keppra. We went 8 months seizure free then he started have seizure episodes. He is 9 months now. He has routine EEGs, EKGs, MRIs, bloodwork. You name it, he’s had it done! He is a true warrior and the sweetest baby!
|Anonymous||$20||July 11, 2023|
|Kelsey Sowers||$15||July 11, 2023|
|Jennifer Lemons||$50||July 11, 2023|
|Cynthia Martin||$30||July 11, 2023|
|Anne Eichelberger||$20||July 11, 2023|