Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Etta was diagnosed with Infantile Spasms when she was 5 months old. The initial hospital we took her to completely dismissed is, laughed in our face, and reluctantly gave us a neuro referral. Later that day she had another 10 minute episode so we took her straight to the children’s hospital where she received her diagnosis almost instantaneously after being connected to the EEG. Within one month of diagnosis, she had failed 3 meds, developed toxicity from one of them, as well as a horrible movement disorder. We spent the next 5 months trying to find the right med combo that would hopefully stop her seizures, with countless EEG’s, hospital stays, lab draws, MRI’s, PET scans, and more.

Etta E.

by Heather Shuker

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Heather Shuker

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