Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Creed was 6 months when he started having febrile seizures, often times he would stare off throughout the day. When asked USA ER departing after having febrile seizures if this could also been a seizure. I was told that children daydream and not to worry about it. So from 6 months to almost 3 years old our sons focal seizures went undiagnosed. In December of 2022 he had multiple 4 to be exact re occurring seizures. After the first 2 we were sent home from the hospital er stating that they were febrile. After videotaping the 3rd we were finally admitted with zero fever. Once we finally got up stairs he had a 5 & 1/2 minute seizure and had to be given rescue meds. We finally got a first diagnosis of Focal & Grand mal Seizures. Since then we have added possibly myoclonic as well. We are going in January for a hospital stay eeg due to his last one in August showing sparks of activity when dozing off for 2 mins in his eeg. If you read it this far “THANK YOU!”. These caps are awesome. We would love one as our son is very fearful of hospitalizations and eegs and more. We would love to make his trip fun and less scary as he also has sensory processing disorder. “Possibly Autism”

Creed M.

by Heather Shuker

  • $50

    Funding Goal
  • $0

    Funds Raised
  • Campaign Never Ends

    Campaign End Method
Raised Percent :
0%
Minimum amount is $ Maximum amount is $ Put a valid number
$

Heather Shuker

336 Campaigns | 0 Loved campaigns

See full bio