I am SO excited to receive my NillyNoggin cap!
I’m even more excited to be part of the Warrior Troop at Hannahtopia.
The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!
This is My Story
Cora’s seizure journey began when she was just 5 months of age. This brave little warrior has been medically through more than most adults that I know. She has had five hospitalizations since October 2020 resulting in multiple ambulance rides, blood sticks, MRIs, EKGs, EEGs, CT and other invasive procedures. Her last seizure caused a silent aspiration which led to a second uncontrollable seizure that resulted in an emergency intubation and PICU stay for 6 grueling days. It was awful to stand by helpless as they coded our daughter and we watched her body try to heal itself in the PICU. She amazingly bounces back after each hospitalization with a smile on her face and lots of laughs which is music to our ears. We aren’t sure where the road will take us as her condition is a spectrum disorder and truly only time will tell, but we hope with the right supports, we can give her the best quality of life possible.