Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Cora’s seizure journey began when she was just 5 months of age. This brave little warrior has been medically through more than most adults that I know. She has had five hospitalizations since October 2020 resulting in multiple ambulance rides, blood sticks, MRIs, EKGs, EEGs, CT and other invasive procedures. Her last seizure caused a silent aspiration which led to a second uncontrollable seizure that resulted in an emergency intubation and PICU stay for 6 grueling days. It was awful to stand by helpless as they coded our daughter and we watched her body try to heal itself in the PICU. She amazingly bounces back after each hospitalization with a smile on her face and lots of laughs which is music to our ears. We aren’t sure where the road will take us as her condition is a spectrum disorder and truly only time will tell, but we hope with the right supports, we can give her the best quality of life possible.

Cora K.

by Heather Shuker

  • $40

    Funding Goal
  • $85

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Heather Shuker

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Name Donate Amount Date
Laura Jacko $5 April 19, 2021
Erica Carson $40 April 17, 2021
Anonymous $40 April 15, 2021