sleeping little boy with trach wearing a red outfit

Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Colt Avery McDade was born on December 2018. He was born Hypotonic but that did not limit him! He remained happy and worked hard everyday. Shortly after at the age of 5 months old he was diagnosed with Infantile Spasms. He was having hundreds of seizures a day and we could not get control. We tried many different medications and they would work for a short period of time and then the seizures would come back with a vengeance. That didn’t stop Colt he still smiled, fought and remained happy! His seizures eventually changed and we then got the diagnosis of Lennox Gastaut Syndrome. He fights every day and some days are harder than others. Still Colts little personality shines through and he smiles and giggles mostly in his sleep. He is so strong!

Colt M.

by Heather Shuker

  • $40

    Funding Goal

  • $40

    Funds Raised

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Heather Shuker

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Name Donate Amount Date
Rachelle Beavers $40 October 26, 2021