I am SO excited to receive my NillyNoggin cap!

I’m even more excited to be part of the Warrior Troop at Hannahtopia.

The Troop is made up of amazing warriors like me – kids and adults who face medical challenges every day. Hannahtopia helps us by bringing fun, color and comfort to our lives. Creating positive happy moments. Happiness is SO important – it helps with the healing process!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot. The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort!

Back My Campaign!

This is My Story

Colbie had a rough go from birth. He has AVID Syndrome and is 1 in 41 children worldwide. He has complicated Hydrocephalus that communicates with his Ventricles. He also has severe brain malformations which has caused Cortical Dysfunction, Focal Dysfunction and Encephalopathy with unknown causes. His brain doesn’t quite calm down. He has Epilepsy that has until recently been controlled with medication. He is almost 3 years old. He is scheduled to have a 3 day EEG at home soon, and a sleep study with EEG for 2 days. We are hoping this cap can help him as he doesn’t like anything on his head. He also has an adult sized head on a small 25 lb toddler frame. His head is 57.5 cm and is quite heavy for him.