Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Colbie had a rough go from birth. He has AVID Syndrome and is 1 in 41 children worldwide. He has complicated Hydrocephalus that communicates with his Ventricles. He also has severe brain malformations which has caused Cortical Dysfunction, Focal Dysfunction and Encephalopathy with unknown causes. His brain doesn’t quite calm down. He has Epilepsy that has until recently been controlled with medication. He is almost 3 years old. He is scheduled to have a 3 day EEG at home soon, and a sleep study with EEG for 2 days. We are hoping this cap can help him as he doesn’t like anything on his head. He also has an adult sized head on a small 25 lb toddler frame. His head is 57.5 cm and is quite heavy for him.

Colbie B.

by Heather Shuker

  • $40

    Funding Goal
  • $85

    Funds Raised
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Heather Shuker

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Name Donate Amount Date
Danieal Lovato $25 March 24, 2022
LOUISE BERUBE-POTTER $20 March 23, 2022
Katrina Brown $40 March 23, 2022