Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

Braelynn was born in 2015. She was first diagnosed with hemihypertrophy at birth. So she has had blood work, ultrasounds done since she was a baby. Back in 2021 Sept. she started having seizures and we didn’t necessarily know why. So we went to a neurologist that had asked about medical history in the family! Her uncle had what is called tuberous sclerosis! It’s where tubers grow with in the brain and certain organs with in the body. They did a genetic test in her and it came back positive for TSC1! Which is what causes her epilepsy! As of right now we are on the last resort. Trying a new medication hoping it will be the one to stop the seizures! If not surgery will be in the future!

Braelynn R.

by Heather Shuker

  • $50

    Funding Goal
  • $50

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Heather Shuker

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Name Donate Amount Date
Casey Reneman $50 November 04, 2022