Help Me Feel like a Rockstar!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.
The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.
And Just a Bit More About Me
Braelynn was born in 2015. She was first diagnosed with hemihypertrophy at birth. So she has had blood work, ultrasounds done since she was a baby. Back in 2021 Sept. she started having seizures and we didn’t necessarily know why. So we went to a neurologist that had asked about medical history in the family! Her uncle had what is called tuberous sclerosis! It’s where tubers grow with in the brain and certain organs with in the body. They did a genetic test in her and it came back positive for TSC1! Which is what causes her epilepsy! As of right now we are on the last resort. Trying a new medication hoping it will be the one to stop the seizures! If not surgery will be in the future!
|Casey Reneman||$50||November 04, 2022|