Short Story

I am on the Waiting List for my NillyNoggin EEG Cap. It will help me during my EEG testing! Please help me reach my goal.

I am so excited to receive my NillyNoggin!

And an added bonus,

if I go above and beyond my goal, we will help other Warriors battling epilepsy! How?

Once I reach my goal of $50, every $50 over that will support other Warriors wishing for a NillyNoggin!

I would really like to help others battling neurological conditions. I know what its like to fight every day and having something to help us get through stressful testing with a smile and help us feel like a rockstar is priceless.

Let’s work together and help sponsor NillyNoggin EEG Caps for more warriors battling epilepsy!

My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.

Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.

The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.

My daughter started having seizures at 4 months old. The original neurologist that we saw told me that her seizures were behavioral and that if I just paid my daughter more attention to her that she would stop misbehaving but he still put her on seizure medication. I was confused and upset and talked to her pediatrician after leaving about getting a referral to someone else. We were then referred to another neurologist a few hours from home who we absolutely love. She has tried very hard to get her records from the original neurologist but he won’t give them to her or me so we basically had to start over. Our new neurologist diagnosed her with epilepsy and absence seizures and decided that a med switch was warranted after an ambulatory EEG. After we took my daughter off of her original medication she returned to having the atypical seizures that originally took us to the neurologist. We are now preparing for our 3rd ambulatory EEG. My daughter is almost 4 and is amazing and takes everything in stride. She never fusses about all of the doctors appointments and procedures she has to have and is always smiling and lighting up the lives of all of the people who love her.

Asia P.

by Heather Shuker

  • $40

    Funding Goal
  • $80

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Heather Shuker

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Name Donate Amount Date
Judy Jiles $40 March 04, 2021
Madison Mool $40 March 04, 2021