Help Me Feel like a Rockstar!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.
The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.
And Just a Bit More About Me
My daughter started having seizures at 4 months old. The original neurologist that we saw told me that her seizures were behavioral and that if I just paid my daughter more attention to her that she would stop misbehaving but he still put her on seizure medication. I was confused and upset and talked to her pediatrician after leaving about getting a referral to someone else. We were then referred to another neurologist a few hours from home who we absolutely love. She has tried very hard to get her records from the original neurologist but he won’t give them to her or me so we basically had to start over. Our new neurologist diagnosed her with epilepsy and absence seizures and decided that a med switch was warranted after an ambulatory EEG. After we took my daughter off of her original medication she returned to having the atypical seizures that originally took us to the neurologist. We are now preparing for our 3rd ambulatory EEG. My daughter is almost 4 and is amazing and takes everything in stride. She never fusses about all of the doctors appointments and procedures she has to have and is always smiling and lighting up the lives of all of the people who love her.
|March 04, 2021
|March 04, 2021