Help Me Feel like a Rockstar!
My medical condition requires me to get EEG tests that are very medically sterile looking and often scary.
Sometimes an EEG is worn for days, in public, and people often stare. The NillyNoggin covers up this scary medical look. It puts a positive, happy twist on the EEG procedure that some of us have to get a lot.
The NillyNoggin cap is comfortable and colorful! Lots of people will come up to talk with me ’cause it’s so cool! It will also give me confidence and comfort! This cap will help ease my anxiety and make life easier on everyone involved with my care.
And Just a Bit More About Me
Amelia was first diagnosed with LGS 3/2021 but after more tests we have discovered she has deletions within the MECP2 gene and has Atypical Rett Syndrome. Amelia will be doing more testing, VEEG and sleep study to find out more about her and what she is dealing with to find the best course of treatment.
|July 23, 2021