3.4 million people suffer from Epilepsy nationwide and
470,000 of them are children.
Source: CDC (https://www.cdc.gov/epilepsy/data/index.html)
We want to make a difference in the lives of these children who live with the challenges of Epilepsy.
Our mission is for every child that requires an EEG to have access to a NillyNoggin EEG Cap.
Full Text of the Video:
I created the NillyNoggin EEG cap after witnessing my daughter go through countless EEG’s over fifteen years.
I wanted to find a solution to ease the stress and anxiety so commonly associated with the EEG tests. I also wanted to infuse color and fun into the experience.
The inspiration is my daughter Hannah. She is sixteen years old and Hannah suffers from severe intractable epilepsy. Hannah’s seizures started at the age of four months old. Her main seizure type is a tonic-clonic which is also known as a grand mal seizure. They are the drop-to-the-floor, body stiffen, violently thrashing seizure. She has had over 100,000 seizures.
These children deal with some serious struggles day in and day out. An EEG can be a very traumatic procedure for a young child or even a child that has some disabilities or some developmental delays.
What happens is you go in to get an EEG and they put around 26 electrodes on your head. And often times these kids are really scared. And they know that the ending result is going to be their head wrapped in white gauze and tape.
The NillyNoggin EEG Cap was something that I created that helps reduce that anxiety. We just want to provide a little comfort, color, and functionality to their experience.
It really brings a lot of positive energy to the room. Because your EEG technicians, your nurses, your doctors, your family and your friends. They give the child all this positive attention.
There’s children that know that they’re gonna get an EEG now and they are actually a little excited about it. Because they know that they get to wear one of these cool hats.
You just don’t know when your child is going to need an EEG.
My mission is to get them at the hospitals. So they are there, they are ready. And when a child is told they are going to get an EEG they can pick from one of our many varieties of patterns.
It’s just really been amazing to see the happiness that these are bringing to their lives and their families.